Rockin’ Wendie and Rainbow Wigs

Rockin’ Wendie and Rainbow Wigs

I’ve wondered for a number of years now who Rockin’ Wendie was and I always admired Team Rockin’ Wendie’s Warriors at the annual Sarcoma Stomp. Tonight I finally found out in an email from Wendie’s sister and it felt SO good. Why? Because...

read more
Defining “Cured” from the Sarcoma Trenches

Defining “Cured” from the Sarcoma Trenches

By guest blogger and sarcoma survivor, Julia McGrath It didn’t take me long after being diagnosed with sarcoma to come to the conclusion that cancer terminology can be really confusing. But here’s how I choose to see it… Most folks gather with their...

read more
No Rare Disease Pity Party Here!

No Rare Disease Pity Party Here!

My family and friends will tell you that I’m a data dork, learn-a-holic and question queen. I guess that is a compliment? 😉 Since taking the helm at the foundation, I’ve been doing a lot of thinking about whether raising funds for a rare disease is more difficult than...

read more
Ground zero, but my way…

Ground zero, but my way…

It was June 2009, and a big day for me. I had just returned from the car dealer, having closed one of life’s chapters by trading in my ancient mommy van for a gently-used, lightning-fast sedan. I stared in glee at my sparkly red machine, reveling in my happiness over...

read more