The Sarcoma Alliance
The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support. All services provided by The Sarcoma Alliance are provided free of charge.
Guidance: A sarcoma diagnosis can be distressing and confusing. As sarcoma survivors, we can help guide you and your loved ones through the complex maze of medical providers, treatment options, and information sources available to you.
Education: Few people know the ins and outs of cancer symptoms, diagnosis, treatment, and clinical research before they find out they have a sarcoma. We can bring you up to speed on the basics, refer you to authoritative publications and websites for further study, and help you get plugged into the various support networks already established for adults and children with sarcoma.
Support: It can be a lonely experience finding out you have a sarcoma. We can link you up with other people facing similar challenges. We believe that the most successful patients are educated and connected to others for social support. The Alliance is creating a peer-to-peer webpage and a “biographies” page to allow patients and their loved ones to share their experiences with others dealing with the same diagnosis.
Imerman Angels is a nonprofit that provides personalized connections that enable one-on-one support among cancer fighters, survivors, and caregivers.
ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders. ACOR online communities are for parents, caregivers, family members, and friends to discuss clinical and nonclinical issues and advances pertaining to all forms of a specific disease. This includes patient and caregiver experiences, psychosocial issues, new research, clinical trials, long-term side effects and discussions of current treatment practices.
Facebook Support Groups
There are a number of sarcoma support groups on Facebook, including:
- Sarcoma Alliance
- Sarcoma Support Initiative
- Angiosarcoma Cancer
- Pediatric Rhabdomyosarcoma Support Group
- Synovial Sarcoma Support Group
- Leiomyosarcoma Support Group
- Osteosarcoma Survivors, Family and Friends